National Organizations Unite Against Genetic Discrimination
News Discrimination is a fact of life for many people with Parkinson’s disease, a problem that is being addressed by Parkinson Society Canada (PSC) and the Canadian Coalition for Genetic Fairness (CCGF/CCEG).
The Canadian Coalition for Genetic Fairness (CCGF/CCEG) is “deeply concerned about discrimination against individuals based on their genetic make-up,” according to their website. Parkinson Society Canada is one of the 15 member organizations dedicated to establishing protections against genetic discrimination for all Canadians, especially those living with genetic-based diseases.
"Today, Parkinson Society Canada is recruiting volunteers from federal ridings across Canada to join a national advocacy network serving as Parkinson’s Ambassadors."
Genetic discrimination occurs when people are treated unfairly because of actual or perceived differences in their genetic information that increases their risk to develop a disorder. For example, a health insurer might refuse to give coverage to a woman with a genetic difference that raises her odds of getting ovarian cancer. Employers could also use genetic information to decide whether to hire, promote or fire workers.
While genetic discrimination can occur in any environment or interaction, the CCGF has a particular concern about stigmatizing in the areas of employment and access to insurance (i.e. life, critical care, disability and mortgage).
Members of CCGF, including PSC, recently testified before the Senate Standing Committee on Human Rights in support of Bill S-201, an Act to prohibit and prevent genetic discrimination, and implement genetic fairness legislation.
Today, Parkinson Society Canada is recruiting volunteers from federal ridings across Canada to join a national advocacy network serving as Parkinson’s Ambassadors. These motivated individuals will help move Parkinson’s issues, including genetic fairness, forward in the 2015 election and beyond, by educating others and participating in government relations and advocacy initiatives.