Why Canada Still Needs an Orphan Drug Policy
The Canadian government’s “Kiss of Death” to rare disease drug development plan have left patients feeling hopeless — where do we go from here?
TOPICS There are plenty of rare diseases that you or someone in your life may be affected by. Understand the risks, how you can protect yourself, and what researchers in Canada are doing to find a cure!
The Canadian government’s “Kiss of Death” to rare disease drug development plan have left patients feeling hopeless — where do we go from here?
The only spinal muscular atrophy treatment available isn't accessible to every patient — and as rare diseases become not-so-rare, it's time we take a look at Canadian policy.
Learn about Personalize My Treatment, a digital cancer registry that stores patients’ genomic testing results to help match them with targeted therapies.
Only 5% of research dollars in Canada go toward childhood cancer. Childhood Cancer Canada enhances and supports the lives of kids with cancer.
Durhane Wong-Rieger speaks to the need for equitable access among rare disease patients, and the unique challenges they face.
Because of their rarity, bleeding disorders are often unfamiliar and can take longer to diagnose.
Dave and Lindey McIntyre lost their toddler Bethany 25 years ago to a horrible disease that leads to paralysis followed by death. A cure is yet to be found. Find out how you can help Dave and Lindey find a cure.
Learn about what doctors have referred to as “the most painful condition you’ve ever heard of”.
Learn more about alpha-1 antitrypsin (AAT) deficiency and its available treatment.
Parents with children with rare diseases such as spinal muscular atrophy (SMA) are fighting for equal access to treatment.
Learn more about patient support programs (PSP) and how they’re being used to help support people through their journeys.
Jesse Davidson’s struggle with Duchenne Muscular Dystrophy (DMD) started back when he was 5 years old. At 29, his father John lost Jesse to this fatal disease and continues to raise money in his honor to raise awareness.
Paraxysmal Nocturnal Hemoglobinuria (PNH) used be considered a deadly disease, but now with effective treatment, patients with PNH can expect to live a long healthy life.
Hypophosphatasia (HPP) is a rare bone disease affecting people worldwide. The term hypophosphotasia was coined by the Canadian Doctor John Rathbun and Canada remains to be the world leader in HPP research and treatments.
Mediaplanet checked in with him to discuss how CCD has affected both his acting career and personal life.
IRICoR specializes in drug discovery. Its network and resources are set to benefit a growing pool of Canadian and international drug discovery innovators.
